Saturday, January 28, 2012

Thrombophilia Links

Thrombophilia Links

......(source www.fvleiden.org ) .... 17 years ago when I searched the web for the first time, I only found one article on FVL and thrombophilia- actually it was difficult to find anything on thrombophilia. Now if you search, you'll find many articles.

This list is not exhaustive or comprehensive. It is a sampling of what's out there. If you want to read up on APC, APS, FVL or any other clotting disorder go to one of the major search engines and put in a variety of spellings for the disorder. You will find many articles.
Check out our Education Section, which contains locally-hosted documents regarding FVL and Thrombophilia. Find a Doctor >>
Links for Factor V Leiden
Mayo Clinic.com
Venous Thrombosis and the Factor V (Leiden) Mutation
Listing of FVL resources
Venous Thrombosis and the Factor V (Leiden) Mutation
Pregnancy, Clotting, and Factor V Leiden: An Overview
Information on the genetic Factor V Leiden test
Yahoo group-Factor V Leiden and Pregnancy(only) information
Factor V Leiden Mutation Analysis
Home INR Testing Machine Information
Listing of Home INR testing machine information
FVleiden.org recently diagnosed section on home INR testing machines
DVT Information
SHM-Society of Hospital Medicine-Venous Thromboembolism
Vascular Disease Foundation
Antiphospholipid Antibody Syndrome Information
APS Links
APS Foundation of America
MedicineNet.com
APLS.TK
Clinical Trials
NIH Clinical Trials Page
Clinical Trials at Novartis
Center Watch Clinical Trials
Injectable Anticoagulants
Listing of injectable anticoagulant resources
Thrombophilia Fundraising:
Donate to TAP
Foundations or companies specializing in clotting
North American Thrombosis Forum
ClotCare - online Resource
Venus handbook -all clotting disorders explained
AirHealth.org - How to avoid getting a DVT while traveling
Picture and explanation of blood clotting from RNcenus.com
Blood clotting information
Lovenox Information
Medline Plus Drug Information
NORD
International Society of Thrombosis and Haemostasis(ISTH)
American College of Cardiology
American Heart Association
Preeclampsia Foundation
Stanford OAC Information
Coumadin® Information
mybloodthinner.org
Coumadin® Home Page
INR@Home
PTINR.com
Information on coumadin® side effects from two members of our email forum
General links regarding clotting and/or thrombosis information
List of CDC founded thrombophila Centers
Heparin-induced thrombocytopenia (HIT)
Office of Rare Diseases
Thrombosis Online
Yahoo Thrombosis Group
APC and Protein S Deficiency Articles
APC and Protein S Deficiency Links
Protein S Deficiency and Thrombophilia in the UK
EMedicine Protein S Deficiency
FVL:Activated Protein C Resistance
Children's Information
Cardinal Glennon Children's Hospital's excellent children's book -for children-A story describing what FVL and a clotting
Centers that treat children with thrombophilia
Children's Blood Foundation
Pediatric Stroke Network
Project Red Flag Scholarship info from NHF
Hereditary Antithrombin Deficiency
ATryn Available for Patients with Hereditary Antithrombin Deficiency
MTHFR Information
MTHFR Links
A listing of resources for MTHFR
Pregnancy info.net - MTHFR
Homocysteine and MTHFR Mutations
Hyperhomocysteinemia
Vitamin K Information
Vitamin K links A vitamin K resource
Vitamin K and Diet from the government
Vitamin K Content of Common Food




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Living with Thrombophilia

Resource: Website: Thrombophilia

http://www.fvleiden.org

Thrombophilia is a term which includes a number of genetic conditions which increase the tendency of the blood to clot, leading to sometimes serious and/or life-threatening complications depending on the location of the clot.
This website exists to help persons affected by thrombophilia by serving as a portal to a wide array of diverse and up-to-date information, education, treatment, research, peer support and more.
This site is created and managed by a patient for other patients. I hope by sharing this information, you'll find the information you need to stay healthy and clot free.

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